New York City Adventures

      

       Our Hero in Boston

Ben's Song


 

    I created the video above by selecting a number of photographs and setting them to a song that was written specifically for Benjamin. Ben's Song was written by Carl Allocco through the Songs of Love Project. He is based in New York City. It has brought many smiles to our family and really captures a portion of who Ben is. It may take a little while to load the starting image if you are on a slow connection. It is worth the wait. You may also have to click on the image twice depending on your browser. The first time to activate the video window and the second time to start the video. If you have a YouTube account please go to YouTube and rate the video and/or leave a comment on it. The related videos are selected by YouTube we don't have any control over them.


    The drawing that you see to the upper right is the Green Drakkoman. Benjamin has been drawing and creating stories about the Green Drakkoman since he could hold a pen. We're not sure which came first the drawings or the stories. The picture to the left was taken during an interview with a reporter from the Times Union. The reporter wrote a lovely article that appeared in the paper shortly after. The photographer watched carefully and quietly took many photographs. I think this particular image really captured Ben and the current situation we are in.

                             

     The Green Drakkoman is a super hero friend of Benjamin's. The Green Drakkoman has many arch enemies. One of those arch enemies is the Evil Alien. It seems that the Evil Alien has found the Green Drakkoman's friend Benjamin and is hiding in his arm. It is the Evil Alien that is making him sick. The doctors are working with the Green Drakkoman to defeat the Evil Alien. They are using a strong weapon called chemotherapy to weaken the Evil Alien so the Green Drakkoman can defeat him. After the Evil Alien is defeated by the Green Drakkoman they will remove him and use more chemotherapy to make sure the Evil Alien does not return. Benjamin is not worried because he knows that the Green Drakkoman can defeat the Evil Alien and he will be well again.

   Video on YouTube of Ben's Song -

                        

     Benjamin has been diagnosed with a type of bone cancer called Osteogenic Sarcoma. It is also called Osteosarcoma. It is located in the upper half of his right arm. His treatments are going to include 3 months of chemotherapy followed by surgery and then 3 more months of chemotherapy. During his chemotherapy he will have to be admitted into the hospital to receive it, but, during the rest of the chemotherapy he will be home. We are trying to keep his life as close to normal as possible. The story of the Green Drakkoman is one of Ben's creations. He draws many story boards and has outlined stories, movies, games, and comics featuring the Green Drakkoman and other heroes. He has also continued the work of George Lucas and created additional chapters to the Star Wars saga.  

                             

     On the Wednesday after labor day his mother took him to the emergency room because she noticed he had difficulty raising his right arm above his head when she was getting him into his pajamas after his bath. It was 8 pm the night before the first day of school and she wanted to make sure he was ok for school. Benjamin had fallen out of bed every night for the previous 8 nights and the doctor in the emergency room sent them home telling his mother, "It must be a strained muscle, if it doesn't get better or gets worse make an appointment with your pediatrician on Friday." Ben went to school and that weekend played soccer. The next Friday at 10:30 am we received a call from our pediatrician telling us that we needed to get him a MRI and they had made an appointment for us at 2 pm. It took a couple of hours and then we went to their office for the report. They had already made an appointment for us on the following Monday with an Orthopaedic Surgical Oncologist and forwarded the reports to him. The next Friday Benjamin had a biopsy and we were told the unofficial diagnosis - Second Stage Osteogenic Sarcoma - which was confirmed the following Monday. The next Friday Benjamin began chemotherapy.

                      

     We will continue to add to this web site in the hopes of keeping you all informed of Benjamin's progress.

                                 

In case you are wondering that is a stick from a Tootsie Pop in Ben's mouth.

                    

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Here are a couple of links to sites about osteosarcoma:

http://cancer.iu.edu/osteosarcoma/osfacts/

http://kidshealth.org/parent/medical/cancer/cancer_osteosarcoma.html

http://planning.cancer.gov/disease/Sarcoma-Snapshot.pdf

                                       

                       

http://www.youtube.com/watch?v=HVxwcCNwkME

http://www.youtube.com/watch?v=HVxwcCNwkME